National Comprehensive Cancer Network: http://www.nccn.org is an alliance of 21 of the world’s leading cancer centers, working together to develop treatment guidelines for most cancers, and dedicated to research that improves the quality, effectiveness and efficiency of cancer care.

UpToDate: http://www.uptodate.com Now patients have access to UpToDate, to learn more about a medical condition, better understand management and treatment options, and have a better dialogue with health care providers.

National Cancer Institute: http://www.cancer.gov A good site to learn more about common cancer types, clinical trials, statistics, and more

Covenant Physician Directory: http://www.covenanthealth.org/apps/FindAPhysician/ Search an extensive and updated list of physicians affiliated with CHS.

Epocrates Online: https://online.epocrates.com/home a free, fast and effective way to find continually updated information on hundreds of drugs and diagnoses.

American Cancer Society: http://www.cancer.org 1959 Clifton Road, N.E., Atlanta, GA 30329, 800-227-2345 Special Programs: Look Good Feel Better helps patients in treatment use wigs and other accessories to raise their self-image; Reach to Recovery connects breast cancer survivors with women undergoing breast cancer treatment; Man to Man connects prostate cancer survivors to other men undergoing prostate cancer treatment; CanSurmount connects patients with cancer survivors. Telephone counselors can provide referrals to community resources and medical information by phone or sent through the mail. Extensive information is available on the ACS website. Local offices may provide patient transportation, and may stock wigs or prostheses to those in financial need. They also offer a catalog of special products for those with breast cancer or suffering hair loss. Some limited financial assistance is available for home health care, childcare, medical equipment and pain medication for those with little or no insurance. The ACS can intervene in medical insurance disputes as well.

Association of Cancer Online Resources: (ACOR): http://www.acor.org ACOR offers information about cancer patient resources on the Internet. It allows patients to research and sign up for many cancer-specific listservers, where patients and caregivers may have discussions via email or live online chats with other patients and caregivers.

Medscape.com: http://www.medscape.com This website offers an extensive collection of articles on the latest cancer research, practice guidelines, latest cancer news, conference summaries, information on cancer-related medications, and related website links. To use this website, you must do a one-time registration. It has in-depth “Resource Centers” on breast, prostate and lung cancers, as well as pain management and anemia-related fatigue. It also offers a weekly “MedPulse” email notification of the latest news on the specialties you choose.

National Coalition for Cancer Survivorship (NCCS): http://www.cansearch.org 1010 Wayne Ave., Suite 770, Silver Spring, MD 20910 877-622-7937 This patient-led organization is on policy, publications and programs to empower cancer survivors.

Cancer Information Service of the National Cancer Institute: http://cancer.gov
800-422-6237 The Cancer Information Service provides information for patients through trained information specialists who can research the NCI’s extensive database of treatment options and send you selected summaries about these options. They also have information on clinical trials in your area and other information related to cancer. The majority of their information is on the Web.

Medicare: http://www.medicare.gov 800-633-4227 For information on Medicare benefits and eligibility.

National Institute of Health Clinical Trial Listing: http://clinicaltrials.gov This website lists clinical trials that the NIH is sponsoring. Not all clinical trials run directly through drug or equipment companies or at medical centers will be listed here.

American Society of Clinical Oncology (ASCO): 703-299-0150 http://www.asco.org
1900 Duke Street, Suite 200, Alexandria, VA 22314 Society for oncology professionals. Peer-reviewed journal, conferences, reports on the latest research, and dedicated section of their website for people living with cancer, regarding clinical trials, and patient guides.

Oncology Nursing Society: http://www.ons.org 412-921-7373 ONS offers continuing education, research grants and conferences in oncology nursing. Through its allied organization, Oncology Nursing Certification Corporation, it offers the OCN® and AOCN® certifications for oncology nurses. They also offer extensive patient education information on their website and partner with organizations to create patient education materials.

Lymphedema: National Lymphedema Network http://www.lymphnet.org
800-541-3259 Latham Square, 1611 Telegraph Avenue, Suite 1111, Oakland, CA 94612 NLN can direct patients to lymphedema treatment centers and professionals, provide patient education online and by phone, and has a newsletter.

Ostomies: United Ostomy Association http://www.uoa.org 800-826-0826 19772 MacArthur Blvd., Suite 200, Irvine, CA 92612 UOA offers many chapters around the country that offer education and support groups. They make referrals to enterostomal nurses (experts in ostomies) and to distributors of ostomy equipment.

Please note: many of the organizations listed under “General” information above have excellent information and support resources around many specific cancers. The organizations below have chosen to focus on particular cancers to support with patient education, research funding and other services. These organizations provide a wide variety of services, some of which are listed below. If you contact an organization, be sure to ask for a full listing of the services and products they offer.

American Brain Tumor Association: http://www.abta.org 800-886-2282 2720 River Road, Des Plaines, IL 60018 ABT provides referrals to community resources for people with brain cancer, a pen pal program, newsletter and education publications.

Brain Tumor Society: http://www.tbts.org 800-770-8287 124 Watertown Street, Suite 3-H, Watertown, MA 02472 Volunteers at BTS provide information on treatment by phone or mail, referrals to support groups, and BTS has a newsletter and education publications.

Dept. of Defense Breast Cancer Decision Guide: http://www.bcdg.org/index.htm This website was developed by the U.S. Department of Defense Breast Cancer Prevention, Education and Diagnosis Program Initiative for individuals diagnosed with breast cancer and their family members.

National Lymphedema Network: http://www.lymphnet.org 800-541-3259 2211 Post Street, Suite 404, San Francisco, CA 94115 NLN can direct patients to lymphedema treatment centers and professionals, provide patient education online and by phone, and offers a newsletter.

Reach to Recovery / American Cancer Society: http://www.cancer.org See the American Cancer Society description.

Susan G. Komen Breast Cancer Foundation: http://www.breastcacnerinfo.com
800-462-9273 This organization offer information about breast health, breast cancer research and has a “helpline” staffed by volunteers.

Y-ME National Breast Cancer Organization: http://www.y-me.org 800-221-2141 212 W. Van Buren, Chicago, IL 60607 Y-ME offers support to women newly diagnosed with breast cancer. A men’s support line offers male counselors who have had similar experience with loved one’s going through breast cancer.

Women’s Cancer Network/Gynecologic Cancers Foundation: http://www.wcn.org/gcf 401 N. Michigan Avenue Chicago, IL 60611 (312) 644-6610 There is full text education on their website about gynecologic cancers (ovarian, endometrial, uterine, cervical), including disease information, survivor stories, and guide to support organizations. They have compiled a reading list as well.

National Ovarian Cancer Coalition: http://www.ovarian.org 888-682-7426 P.O. Box 4472, Boca Raton, FL 33429 NOAC offers a newsletter, referrals to gynecologic oncologists, database searches for educational materials, chats with fellow survivors, and support groups in many states or references to other organizations ovarian cancer support groups.

Support for People with Oral and Head and Neck Cancer: http://www.spohnc.org 516-759-5333 P.O. Box 53, Locust Valley, NY 11560 This group offers newsletter with information on clinical trials, treatments, employment issues and oral care.

National Kidney Cancer Association: http://www.nkca.org 800-850-912 1234 Sherman Avenue, Suite 203, Evanston, IL 60202 NKCA offers referrals to specialists, assistance in getting insurance to cover experimental treatment, clinical trials information, and online chat groups and educational publications.

International Myeloma Foundation: http://www.myeloma.org 800-452-2873 2129 Stanley Hills Drive, Los Angeles, CA 90046 IMF connects survivors to current patients and their families, and offers education publications and a newsletter.

Leukemia Society of America: http://www.leukemia.org 800-955-4572 600 Third Avenue, New York, NY 10016 This group offers financial aid and supplementary assistance to those with leukemia, Hodgkin’s disease, Non-Hodgkin’s lymphoma and multiple myeloma. There are many local chapters, some with a Family Support Group program. LSA matches new patients with survivors for support.

Lymphoma Research Foundation of America: http://www.lymphoma.org 310-2094-7040 8800 Venice Boulevard, Suite 207, Los Angeles, CA 90034 LRFA funds research, has patient education materials, sponsors a nationwide buddy program partnering the newly diagnosed with lymphoma survivors, and maintains a help line with information on treatment options and clinical trials.

The Leukemia and Lymphoma Society: http://www.leukemia.org 800-955-4572
This organization provides services such as support groups and patient education publications for those with leukemia, lymphoma and multiple myeloma.

Alliance for Lung Cancer Advocacy, Support and Education: http://www.alcase.org 1601 Lincoln Avenue, Vancouver, W 98660 800-298-2436 ALCASE publishes The Lung Cancer Resource Guide, which has extensive information on lung cancer treatment and services. They will do medical database searches for patients, offer Phone Buddies to match patient with lung cancer survivors, and have a newsletter.

LungCancer.org: http://www.lungcancer.org 877-646-5864 This organization is focused on offering online the latest news in screening, detection and treatment for lung cancer. Experts answer questions; a newsletter and resource library are offered. The website is sponsored by CancerCare® and the Oncology Nursing Society.

American Foundation for Urologic Disease: http://www.afud.org AFUD’s mission is the prevention and cure of urologic diseases through the expansion of research, education, and public awareness. For prostate cancer patients, they offer the Prostate Cancer Support Network, which links prostate cancer support groups, survivors, families and friends by coordinating prostate cancer awareness and advocacy programs, focusing on the issues of prostate cancer survivors.

Man to Man / American Cancer Society: http://www.cancer.org See the American Cancer Society description.

US TOO International: http://www.ustoo.com 800-808-7866
This organization offers many chapters that provide support groups and services to men with prostate cancer and their loved ones.

The Melanoma Research Foundation: http://www.melanoma.org MFR supports research into finding a cure. They offer a newsletter.

The Skin Cancer Foundation: http://www.skincancer.org 245 5th Avenue Suite #1403New York, NY 10016 1-800-SKIN-490 SCF is focused on public professional education programs. They also offer research support.

Other Links

National Cancer Institute
http://cancer.gov/cancerinformation

The National Surgical Adjunct Breast and Bowl Project (NSABP)
http://www.nsabp.pitt.edu/

Oncolink
http://cancer.med.upenn.edu/

Covenant Health System
http://www.covenanthealth.org/

St. Joseph Health System
http://www.stjhs.org/